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There are many reasons for having an ostomy including cancer, Crohn’s disease, birth defects, diverticulitis, and birth anomalies, just to name a few. Many of us wear more than one medical “hat” so having information that is cause-specific can be very helpful. The more information and support one can find, the better!

Almost all hospitals have their own ostomy handbooks that they give patients when they leave the hospital, and almost all manufacturers have pamphlets and/or CD’s that they send (for free) when you place your first order. Unfortunately, many patients are so overwhelmed at the beginning of their journey, they either don’t notice these materials among all the papers sent home, or they forget they even received them.  (You can always call to request another copy!) There are many other free downloadable pamphlets out there; find the one that fits your needs the best.

Manufacturers and suppliers are NOT the same thing!

Most patients are sent home with limited supplies when they leave the hospital.  But, the process of obtaining news supplies can be daunting.  What do I need? What are things called? Finding the right type of ostomy supplies is essential for living relatively stress-free with an ostomy.  One of the best source of information for new products and for supplier recommendations is your wound care nurse.

In addition, people find that after a while, they may need a different type of product. By then, most people will know what to ask for and the major manufacturers will be happy to send free samples for you to try. If you attend our OAGO Support Group meetings, you can always ask for recommendations and feedback on products other people are using.

Where do I get my supplies? How much do they cost? Who pays for them and how? A key piece of information that is often omitted when explaining things to new patients, is that manufacturers and suppliers are not the same! Manufacturers design and produce ostomy products, but your supplier (a completely different company) is responsible for getting them to you.

If you have insurance, your insurance company will tell you which suppliers can fill your order (a doctor’s prescription will be required). Be especially careful that if you have Medicare, you know which supplier to use. If you do not have insurance, you can order directly from certain suppliers or order on-line (Amazon, etc.).

In case of an emergency, our organization (OAGO) has a gift room with limited supplies that have been graciously donated by our members and others.

Manufacturers and suppliers are NOT the same thing!

Most patients are sent home with limited supplies when they leave the hospital.  But, the process of obtaining news supplies can be daunting.  What do I need? What are things called? Finding the right type of ostomy supplies is essential for living relatively stress-free with an ostomy.  One of the best source of information for new products and for supplier recommendations is your wound care nurse.

In addition, people find that after a while, they may need a different type of product. By then, most people will know what to ask for and the major manufacturers will be happy to send free samples for you to try. If you attend our OAGO Support Group meetings, you can always ask for recommendations and feedback on products other people are using.

Where do I get my supplies? How much do they cost? Who pays for them and how? A key piece of information that is often omitted when explaining things to new patients, is that manufacturers and suppliers are not the same! Manufacturers design and produce ostomy products, but your supplier (a completely different company) is responsible for getting them to you.

If you have insurance, your insurance company will tell you which suppliers can fill your order (a doctor’s prescription will be required). Be especially careful that if you have Medicare, you know which supplier to use. If you do not have insurance, you can order directly from certain suppliers or order on-line (Amazon, etc.).

In case of an emergency, our organization (OAGO) has a gift room with limited supplies that have been graciously donated by our members and others.

(These are just a few!)

There are MANY specialty clothing and accessory items that make living life with an ostomy not only comfortable, but fashionable and fun. Whether you need a hernia belt to offer support, a bathing suit for the beach, sexy lingerie for intimacy, or a funny pouch cover to express your personality, there is something out there for you.

There are also wonderful products to reduce odors, carry supplies, etc. Let us know if you hear of something new!

Some of us are able to attend meetings and others benefit from online support and information that can be obtained any time of night or day, without even having to get out of one’s pajamas.

There are many wonderful Facebook support groups for those with ostomies and those who have gone through reversal surgery.  Some groups number in the thousands!  They are good places to ask immediate questions or just to “vent.” Plus, you can do this in your pajamas! Most of these are closed groups, where you request membership. Our own OAGO Facebook Page is currently being updated, but we’ll let you know when we’re ready.

Check here often as we create or find helpful videos for you!

Check here often as we create or find helpful infographics or other info in pdf format.

*WE DO NOT PROVIDE MEDICAL ADVICE; WE DO SHARE INFORMATION AND EXPERIENCE!

uoaa logoThe Ostomy Association of Greater Orlando, Inc. is an IRS 501(c)(3) tax-exempt non-profit corporation with “umbrella” status under our parent company, United Ostomy Associations of America, Inc. We are an all -volunteer support group dedicated to assisting people who have or will have intestinal or urinary tract diversions.